Last partial update: June 2019 - Please read disclaimer before proceeding
Eating disorders - General information
Eating disorders are important psychological illnesses among adolescent girls and young women. (They are the third most important chronic illness in adolescent females behind asthma and obesity.)
In Australia, about 25% of girls aged 13 to 17 eat to control weight and about 47% exercise to control weight. However, only about 1% of adolescent girls suffer from bulimia nervosa and 0.3% suffer from anoxia nervosa. (These rates are hard to assess and the figures mentu=ioned may underestimate the problem.)
Males are occasionally affected, mostly in association with substance abuse. While dieting is a major risk factor for the disease, especially severe dieting, the vast majority of adolescent girls who diet do not develop an eating disorder.
Having a personal or family predisposition to being overweight is a risk factor for developing an eating disorder, with the effect being both genetically and culturally based. Other risk factors include childhood trauma (including sexual abuse), an early menarche in girls and the conditions are often associted with other mental illnesses such as low self-esteme and anxiety and depression.
Anorexia
Characteristics associated with anorexia include low body weight, food avoidance, excessive concern about being fat / putting on any weight, distorted body-size image, the use of purging, and excessive exercise. Weight goals are continually lowered as the disease progresses. Anorexia patients do not binge-eat in a true sense as they rarely consume excessive amounts of food. However, they feel that they binge as even consuming a normal sized meal seems like a binge to them.
The condition has both genetic and cultural influences and often follows a major life-change / life stress. It is more common in women who are involved in activities that value thinness, such as ballet, high-level athletics and modelling. It is about 10 times more common in women than men.
Their medical problems stem from a lack of energy and nutrients in their diet and from the use of laxatives, diet pills etc. Common problems occuring with the condition include weakness, chronic fatigue, osteoporosis (weak bones), growth retardation, diarrhoea or constipation, low blood pressure, anaemia and hormonal problems, such as menstrual periods becoming less frequent or ceasing, impaired fertility and the appearance of fine body hair. They also often have co-existing mental illness, especially rapid mood swings, depression / anxiety, self harm, obsessive compulsive disorder and social phobia. (They are often solitary people.)
They ususally have low self-esteem that is linked to assessments of their weight and the longer this association persists, the harder treatment becomes.
They are often deny their symptoms and thus are relatively unconcerned about them; indeed, they often see them as a solution to their underlying psychological problems. Thus, they are often difficult to engage in treatment. As weight loss has become part of their life coping strategy, treatment needs to include building alternate coping strategies and this takes time.
Death from the complications of anorexia also occur very occasionally and anorexia is also a risk factor for suicide.
The three criteria for diagnosis are as follows:
- Restriction of energy intake resulting in less than minimally normal or expected weight.
- Intense fear of gaining weight despite being at a significantly low weight.
- Disturbed perception of one’s body weight or shape, and lack of awareness of seriousness of significantly low weight.
Bulimia nervosa
In bulimia, the person is usually normal weight or overweight but has tried or is trying to lose weight by food restriction. A period of food restriction is followed by binge eating. These eating binges occur is characterised by:
- eating faster than normal
- eating large amounts of food to the extent that the person becomes uncomfortably full
- eating when not hungry
- loos of control over how much and what is eaten
- planning binges in advance, including purchasing special binge foods
- feeling of guilt following a binge
- eating alone due to embarrasment regarding the quantity of food being consumed
- self-induced vomiting or the use of laxatives and diuretics is common following an eating binge.
Binging usually occurs several times a week but can occur up to a couple of time a day in more serious cases.
Other efforts to lose weight can include the use of diuretics, stimulants and excessive exercising.
They have often experienced large fluctuations in weight and are often not underweight. This cycle continues with the person having haphazard eating patterns. The guilt associated with the behaviours causes low self-esteem and the anxiety related to food and weight leads to relationship problems, depression and self-harm. Other associated problems include weakness, teeth problems, and alcohol and other substance abuse, obsessive complusive disorders, multiple gastrointestinal symptoms and electrolyte imbalance. Genetic predisposition is a prominant risk factor and having poor self esteem. A past history of being over weight is also a risk factor but most people with bulimia have a normal weight.
Bulimia is most commonly diagnosed in adolescents; between 13 and 20 years. About 50% fully recover and about 20% partially recover.
Binge eating disorder
Binge eating disorder is associated with frequently binge eating, similar to the patterns found in bulimia nervosa, but is not associated with purging (self-induced vomiting after eating). It can be condsidered a mild form of bulimia; with bingeing occurring less often. It occurs in about 2% of the population, is more common in women and is the most common eating disorder in adults. It is common in young women and adults seeking weight loss treatment. Like bulimia it is often associated with other mental illness.
Self-esteemin annorexia and bulimia
In both disorders, self esteem is unduly influenced by weight and addressing this issue is one of the main aims of therapy. Sufferers are often irritable, depressed, socially withdrawn, exhibit reduced concentration and are obsessive, especially with regard to food and eating patterns. Many patients do not feel they have a problem and this makes treatment difficult.
Other specified feeding or eating disorders
As well as the three commonly recognised disorders mentioned above, new variants of these disorders are being recognised. They occur in about 3% of the population and include:
- A variant of Anorexia nervosa:
- Atypical anorexia nervosa, where the person has normal or above normal weight
- Two variants of Bulimia nervosa
- Bulimia nervosa type, where infrequent binge eatring is combined with extreme weight control behaviours
- Purging disorder, where purging occurs in the abscence of binge eating
- A variant of binge eating disorder
- Binge eating disorder type where the binge eatingoccurs infrequently.
- Night eating syndrome, where binge eating occurs regularly at night without altered consciousness
Relative energy deficiency in sport.
This is another condition that is in some individuals linked to eating disorders. It mainly occurs in women who play sport seriously and thus do a lot of exercise. It is easy for them to end up consuming inadequate energy from their food to supply enough energy for their exercise and maintaining normal body function. In some individuals this is inadvertant while in others it is intentional and it is these individuals who have an eating disorder. Their body tries to adapt to this energy deficiency by altering its normal functioning to reduce energy expenditure. This topic is dealt with in detail separately. See section 'Relative energy deficiency in sport.'
As can be seen from the above, eating dosorders are a complex mix of different conditions . Anyone suspected of having an eating disorder or who has a relative they suspect of having an eating disorder should see their GP.
Risk factors for eating disorders
There are four major risk factors for eating disorders.
Dieting: Dieting is the major risk factor and the risk is proportional to the extent of the dieting. The problem is that most diets are unsustainable because they are too strict and restrictive to be adhered too for very long and often provide insufficient energy to allow the body to function adequately in the long term. Thus, diets are only kept too in the short term , resulting in failure to achieve desired weight loss and accompanying guilt and reduced self-esteme. Repeated failures often lead to alternate, more inappropriate behaviours being undertaken, such as the use of laxatives and diuretics and purging, and the person starts to develop obsessive thoughts and behaviours relating to eating and exercise.
Some overweight people do need to change their eating patterns. The important thing is that this is done in a healthy manner by sensible, sustainable and realistic changes that are adopted for the long term. Short term fixes are never a good solution to weight problems. This topic is comprehensively covered in the section on obesity.
Body image: It is common for women to have distorted images of their body, with over half of those in the healthy weight range thinking that they are too fat. Self-destructive behavious such as dieting and associated rebound binge eating commonly result from distorted body image that causes reduced self esteme.
Low self esteme: Self esteme is a measure of how a person feels about themselves generally and is determined by many factors. (Body image percetion is one.) Thus, low self esteme in a person usually has multiple causes. Self esteme is very important as it determines the way a person chooses to live their life. It influences the relationships, lifestyles, career paths and activities they choose to incorporate into their lives.
Some tips for improving self esteem
- Choose to spend time with people who are supportive / encouraging by nature and spend less time with people who tend to be overly critical / undermine others.
- Try to recognise and overcome poor thinking that is unhelpful / detrimental to getting through the daily challenges that everyone faces. Such thoughts are often called automatic negative thoughts and most people have them to some extent. They are very commun. Overcoming them is discussed in detail in the section on Cognitive behavioural therapyin the topic Achieving Lifestyle Changes; a section every person should read. (An excellent book on the topic is 'Change your thinking' by Sarah Edlman. Published by ABC Books.)
- Look after yourself. Eat well, do adequate exercise / keep physically fit and ensure time is provided during each week for doing things that you enjoy. (This is not being selfish, it is being fair. Everyone is important and time needs to be divided fairly between one's commitments and one's self.)
- Try to do things that are worth doing; that will be helpful to you or to others.
- Try to be kind / supportive to others and yourself. Doing deliberate acts of kindness are very beneficial to self esteme. Write down a list of possible acts of kindness that will be a help to friends, family and general members of the community and plan them for the week ahead. Include strangers. (Random acts of kindness.) If ideas are hard to think of, google the topic. There will be no shortage of helpful sites.
- Celebrate achievements.
Perfectionism: Perfectionism is a common personality characteristic in people who develop eating disorders. These people wish to attain a perfect body image which is in most cases not achievable. This leads to disappointment ans lower self esteme. People who have this character trait (or the parents of adolescents with this trait) need to be aware of its association with eating disorders and seek help early should early signs of eating dosorders start to develop. (See below.)
Advice for parents regarding preventing eating disorders in their children
General advice regading attitudes to body image
- Show an acceptance of different body images
- Promote the idea that there is more than one definition of beauty.
- Do not criticise children about their appearance.
- Promote sensible exercise to achieve a healthy level of fitness and body confidence. Avoid over execising. Participating in organised sporting activities is the best way to achieve this goal.
- Avoid promoting unrealistic perfectionist goals and behaviour in all your children, whether it be in school work, sport or other activities. Let your child do their best on their own scale.
- Help children become aware of and critically assess the messages they receive via the media about body image (and other issues) by discussing them at home.
Advice regading family eating habits / attitudes to food. (This topic is covered more fully in the section on avoiding Childood Obesity.)
- Eat healthy food / meals at home.
- Restrict the consumption of junk / take away food by all family members.
- Don't have unhealthy foods in the pantry (i.e. don't buy them them.)
- Don't eat unhealthy / takeaway foods yourself.
- Do not label foods as good or bad as this can cause guilt when thus labelled foods are consumed
- Avoid the use of foods as rewards or punishments
- Eat at a table as a family away from the TV.
- Set a good example by adopting healthy eating patterns yourself.
- Don't skip meals, especially breakfast
- Do not participate in short-term dieting behaviour yourself
- Participate in soprt and regular exercise yourself
- Try to ensure children are exposed to a wide range of healthy foods from an early age so that it is possible to have a range of halthy meals that suit everyone in the family. (See section on sorting out fussy eaters in the section on Childhood Obesity.)
- Don't force children to eat if they are full.
It is imortant to recognise eating disorders early for two reasons;
- firstly because early diagnosis improves outcomes by reducing the length and severity of the condition. (After five years annorexia becomes a self-maintaining condition and is very difficult to treat).
- secondly because girls who diet severely require treatment whether or not they develop 'full' anorexia or bulimia as severe dieting itself has physical and mental health repercussions.
Early warning signs that an eating disorder is developing include:
- A constant focus on dieting, food and exercise
- Insisting on having diferent meals to the rest of the family
- Feeling stressed when unable to exercise
- Increasing social withdrawal
- Frequent weighing
- Frequent visits to the bathrom after meals (This may indicate purging is occurring i.e. self induced vomiting or the misuse of laxatives, diuetics or enemas.)
- Hormonal problems, such as menstrual periods becoming less frequent or ceasing, impaired fertility and the appearance of fine body hair.
The SCOFF Screening Test
A positive response to two or more of the following five questions indicates an eating disorder is likely to be present.
1. Do you make yourself sick because you feel uncomfortably full?
2. Do you worry that you have lost control over what you eat?
3. Have you recently lost over six kilograms in weight in a three-month period?
4. Do you believe yourself to be fat when others say you are too thin?
5. Would you say that food dominates your life?
It is important to note that this is a screening test to help identify people with eating disorders. Parents / other carers do not need to wait for these symptoms to appear to seek help if they are worried that their child or a relative or friend has a problem with eating.
Some Screening Questions
- Have you been deliberately trying to limit the amount of food that you eat to influence your shape or weight (whether or not you have succeeded)?
- Have you gone for long periods of time (8 waking hours or more) without eating anything at all in order to influence your shape or weight?
- Have you tried to exclude from your diet any foods that you like in order to influence your shape or weight (whether or not you have succeeded)?
- Have you tried to follow definite rules regarding your eating (for example, a calorie limit) in order to influence your shape or weight (whether or not you have succeeded)?
- Have you had a definite desire to have an empty stomach with the aim of influencing your shape or weight
Assessing weight in adolescents
Several facts make assessing the significance of weight change in adolescents difficult.
- Normally weight increases as adolescebnts grow and thus an adolescent does not have to lose weight to actually have a problem; that is, sometimes a lack of appropriate weight gain can also indicate that a,problem exists / is developing. Thus, it is best to assess weight by calculating the person's BMI from their weight measurement as the BMI takes into account change in height and thus allows for growth.
- As body shape varies with adolescent growth, the healthy range for BMI varies according to age. This means that the suggested BMI cut off level for the diagnosis of anorexia also varies with age.
- Adolescents who develop anorexia will start losing weight from different BMI levels; that is, some will already be slim when they start and others will be overweight. This means that the maladaptive behavioural weight loss strategies adopted by adolescent girls who develop anorexia are often found later in overweight girls and thus they tend to be more entrenched.
Below are suggested Body Mass Index (BMI) criteria for anorexia are as follows. Again, parents should seek help well before these levels are reached as early treatment is likely to increase treatment effectiveness and reduce illness duration.
- At 13 years – a BMI of 15.5 or less
- At 14 years – a BMI of 16.0 or less
- At 16 years – a BMI of 16.5 or less
- 17 years and over – a BMI of 17.5 or less
A very important part of treatment is a coordinated approach throughout and thus a decision regarding who is going to treat the patient needs to be made at the outset. Where ever possible, this should include a specialist psychiatrist / psychologist, a dietician and a GP.
It is very important to realise that treatment success is greatly enhanced by early initiation of treatment. In the past many families have not sought and / or received help until adolescent eating patterns and the family responses to these patterns are too entrenched to be changed significantly.
Annorexia
There are many therapies for treating anorexia but the one for which there is most evidence of benefit is family-based therapy. (The Maudsley Approach) It is very helpful in overcoming / preventing the shame / guilt relationship that commonly develops between the patient and their family and has best results when treatment is commenced early on in the illnesss, before behaviours become too entreanched. (Within three years of symptom onset is best.) It usually done through a hospital outpatients clinic attached to a specialist eating disorder unit or Local Area Mental Health Services. Therapy involves the parents and the adolescent consulting nutritional, medical and mental health experts. It typically involves 6 to 12 months of therapy with full weight restoration in 50% to 75% and most patients who are going to recover have done so at 12 months. Full recovery at 5 years occurs in about 60% to 70% of cases, with the best results occurring in patients when treatment is started earlier on in the illness. Patents and the patient can be seen together or serparately or both.
The detrimental habits associated with Anorexia, such as purging and the use of laxitives, are often denied by patients. Such behaviours are part of their life coping system and it is difficult for patients to leave them behind until they have constructed alternate coping mechanisms. Thus, they often need to be tolerated during the initial stages of psychological therapy.
Recovery from Anorexia can take many years and is often punctuated by relapse. Long term prognosis really depends on the patient willingly engaging in therapy. Forcing eating on the patient, while helping with weight gain in the short term, is often conterproductive in the long term.
Eating disorders associated with being overweight (and normal weight bulimia)
Bulimia and binge eating disorder are best treated by the adolescent receiving cognitive behavioural therapy by a suitably qualified health professional. As well as improving eating behaviour, these therpaies often also result in weight loss; something the patient usually desires.
Medically supervised behavioural weight-loss programs such as the LEARN program have been found to be beneficial in achieveing weight loss.
CBT programs have four core stages:
- Stage 1 - This involves eduction of the patient regarding problem behaviours such as non-hungry eating and why they are unhelpful. It also discusses the principles behind CBT and how it is applied in treating eating disorders. Helpful practices such as regular monitoring of weight and earting patterns are duscussed. Finally treatment goals are set.
- Stage 2 - This centres around the monitoring of key eating behaviours and introducing behavioural experiments to prevent poor eating behaviours and introduce new helpful behaviours, including behaviours associated with increasing exercise.
- Stage 3 - Introduces the concept of questioning and challenging beliefs and attitudes that underly eating disorder behaviours. It also includes problem solving to find possible solutions to problems and then and testing these solutions.
- Stage 4 - Relapse prevention. This involves reviewing and reinforcing strategies that have worked.
While numerous medications have been tried, there are no specific medications recommended for the treatment of eating disorders associated with overweight.
Resources
- Australian New Zealand Academy for Eating Disorders (ANZAED) Disorders, www.anzaed.org.au
- Royal Australian and New Zealand College of Psychiatrists (RANZCP) guidelines, www.ranzcp.org/Files/Resources/Publications/CPG/Clinician/CPG_Clinician_Full_Anorexia-pdf.aspx
- The National Eating Disorders Collaboration resources (prepared for the Commonwealth Department of Health and Ageing, www.nedc.com.au
- Victorian Centre of Excellence in Eating Disorders (CEED), The Royal Melbourne Hospital – Royal Park Campus, email: ceed@mh.org.au
- Headspace, www.headspace.org.au
- New South Wales,
- The Butterfly Foundation, supportline: 1800 33 4673, e-mail: support@thebutterflyfoundation.org.au, www.thebutterflyfoundation.org.au
- Centre for Eating and Dieting Disorders (CEDD) is an academic and service support centre based in Sydney, www.cedd.org.au
- Eating Disorders Victoria (EDV) is a non-profit organisation that aims to support those affected by eating disorders and to better inform the community about disordered eating, www.eatingdisorders.org.au
- Eating Disorders Association Inc Queensland is a non-discriminatory, non-profit organisation funded by the Mental Health Branch of Disability Services Queensland, to provide information, support and referral services for the state of Queensland, Australia, www.eda.org.au
- Isis The Eating Issues Centre works with people aged over 17 years with serious eating issues such as anorexia nervosa, bulimia and compulsive eating, www.isis.org.au
- Women’s Health Works is a non-profit community organisation in Western Australia that provides a range of education, information and support services to women, including self help groups for people experiencing an eating disorder, www.womenshealthworks.org.au
- ARAFMI Mental Health Carers & Friends Association Incorporated is a non-profit community-based organisation in Western Australia that provides information and support for families and friends of people with mental health issues, including family support counselling, support group program advocacy, respite and community education.
- Eating Disorders Association of South Australia (EDASA) is a non-government, not-for-profit incorporated association providing practical advice, empathic support and guidance for those affected by eating disorders in South Australia, www.eatingdisorderssa.org.au/
Centacare: PACE supports individuals living with panic anxiety, obsessive compulsive and eating disorders and those that support them. Services include telephone support, face to face counselling and referral pathways, www.centacare.org.au/OurServices/HealthWellbeing/PACE.aspx#
ARAFMI Tasmania, www.arafmitas.org.au
Top End Mental Health Services (TEMHS), Northern Territory, www.health.nt.gov.au
Further Reading
James Lock and Daniel Le Grange. Helping Your Child Beat an Eating Disorder. The Guildford Press, 2015
June Alexander and Professor Daniel Le Grange. My Kid Is Back. Melbourne University Press, 2009